UK teen waits 10 months for cancer diagnosis
Monday, June 9th, 2008
One of the political themes of this year’s political race revolves around health care and the need to provide universal coverage similar to what is available in Great Britain. While universal coverage seems to be a laudable goal, within such a system the bureaucratic entanglements often cause delays that can mean the difference between life and death.
At the Teenage Cancer Trust’s Fifth International Conference on Teenage and Young Adult Cancer Medicine, a cancer specialist nurse recounted the story of a patient whose cancer diagnosis was delayed by the errors and delays of the NHS referral system.
“The 20-year-old visited his GP with a painless swelling in the neck; a classic symptom of Hodgkin lymphoma. The GP did the right thing and referred him straight away for an ultrasound, which showed abnormalities.
“However, the problems started with the referral pathway. His GP referred him to an ear, nose and throat team at a district general hospital and not to a cancer specialist, which is a common pathway unless cancer has already been diagnosed. The tests that were carried out would not have been able to identify a malignancy. He was given the results a month later and clearly told it was not a cancer. His symptoms worsened and he was referred for a scan, which did not take place for a further two months. The scan was abnormal and he was then referred to another general hospital for a second opinion. This took a further month for an appointment and eventually an open biopsy of the neck lump was performed which is the only way to diagnose Hodgkin lymphoma. The results of the biopsy were further delayed due to the Christmas and New Year period. He was eventually given the diagnosis of Hodgkin lymphoma in January this year, ten months after the first onset of his symptoms.
The young man who is now 21 (and wishes to remain anonymous) said that he first noticed the lump at the end of March last year and he went to his GP in early July. Initially he thought it was a muscle tear from playing rugby, but when it didn’t go away he went to his doctor. “During the following six months until I started treatment at the Christie, the lump grew from 2.5 x 2.5 cms to 15 x 13 cms. But apart from that, I didn’t have any other symptoms, although just as I started at the Christie I began to get night sweats.”
During that time, the patient was continually assured by his doctors that the swellings were non-cancerous.
After the correct diagnosis was made, the young man underwent chemotherapy and the expectations are that the treatment will be successful. According the the cancer specialist nurse, Ms. Sam Smith,
“We don’t know whether delays make a difference to the outcome of these patients, as we don’t have the evidence yet that their outcome would be better had they been treated promptly. But it underlines the need for making referral pathways less complicated and to have specific pathways mapped out for suspected cancer.”
As has been proven in this and other instantces, the ability to quickly assess and address problems is not the forte of any government agency. When crucial, life saving treatments are needed, do patients really want decisions about their health made by a cadre of faceless, nameless, blameless pencil pushers?










